Personal Blog | Endometriosis

Today on the blog I'm sharing something that's been on my heart for a while now.  

Endometriosis + Infertility.

It’s a chronic illness that affects 1 in 10 women.
The official definition of endometriosis is:

a condition resulting from the appearance of endometrial tissue outside the uterus and causing pelvic pain.

Basically endometrial tissue that should be in the uterus somehow grows outside of it.  Endometriosis most commonly involves your ovaries, fallopian tubes and the tissue lining your pelvis. Endometrial tissue may spread beyond pelvic organs.

This causes extreme pain.
Painful periods.
Pain in between periods.
Pain during intercourse.
Pack in your back, neck, legs.
Pain with bowel movements.

Currently there’s no known cause.
And, there’s no way to diagnose without laparoscopic surgery. 

It's a disease that an estimated 1 in 10 women suffer from and it's the most common reason for infertility.

On February 14th of this year I underwent laparoscopic surgery for the diagnosis and removal of endometrial tissue.  Both ovaries were completely covered in endometrial lesions.  

Why am I sharing this with you?

Three reasons.

1. This is a very real disease and it's time to shine a light on it and improve the health of those living with it.  It's time to talk about it.

2. It's time to find a way to diagnose endometriosis without surgery.  McMaster University is working on finding a connection between a blood protein and endometriosis.  You can read about their study here.  I'm extremely interested in helping find a way for doctors to diagnose and to help educate doctors on signs and symptoms.

3. We're doing a fashion fundraiser in September to raise funds for research + education.  We're not 100% sure how this will look exactly.  Whether we'll partner with an established endometriosis charity or create our own.  But we do know that all proceeds from this fundraiser will go towards endometriosis research.  On top of that a portion of all future profits of Once Upon A Time Weddings will go to fund this goal.

Want to get involved? Shoot us an email

Save the Date: Sunday, September 23rd

More details to follow.

If you'd like to read more of Erin's journey you can follow along on her endometriosis journey here.